Ma Guofu mobility, carrying out her sister was so
horse is right, Ma Guofu, Ma Zhengfu (from left to right)
pony Ping recent fall, left femur fracture
walk all depends hand, is the right horse hands and grind of the thick calluses
chief reporter Yang Liju / text reporter Zhang Han / photo
exclusive news
Mile County town of Ma Zhengshun Chuk Yuen, who have 7 suffering from a rare But when the word used to refer to a rare disease - osteogenesis imperfecta (OI), the beautiful it no longer exists, it brings endless suffering of patients. OI is a genetic defect disease, typically characterized by bone thin,
miu miu handbag, brittle, even by the Sometimes no, not even injured, will fracture. In severe cases, patients wake up sleeping blankets or pants when playing, can cause fractures.
the town of Red River State Mile Chuk Yuen Village, Longtan Village Committee banana is Ma Zhengshun a place to live for generations. Ma Zhengshun the family, 7 individuals suffering from brittle bone disease. Gently fall ill who will fracture, simply can not do heavy work. Restricted work, together with a doctor to spend money for a rural family is undoubtedly a double blow. Inability to timely medical treatment because of family poverty, they are now severely deformed legs, bending, very difficult to even walk properly done ... ...
sick Ma 7
Ma Zhengshun (youngest) is the right horse (Five) Ma Zhengfu (youngest) Ma Chunyan (Five's daughter)
Ma Guofu (youngest son) Mali Fen (Sister's daughter) Ma Ping (his older sister's granddaughter )
even feeding the birds
is a difficult task
6 Ma brothers and sisters, of whom four are suffering from brittle bones disease. Sister has died, his daughter inherited the disease and granddaughter. There are sick and the youngest son of Ma Zhengshun, Five horses are right, and daughter, youngest Mazheng Fu et al. Since last year, the town government for the Majia Sheng Yuen's disease for the minimal needs of people,
gucci handbags, the Home also often give them some help, but still can not lift the plight of the family.
Mazheng Shun, 55-year-old, blind since childhood, a family of four living in an old house. His right leg knee fractures, and now walked right leg always felt weak, can not flee, only a day at the gates of the nearby activities. Ma Guofu son also suffered from brittle bones disease, family life, thanks to his wife and daughter. Sanitation station in the town of his wife sweeping Chuk Yuen, only 400 yuan per month income,
handbags uk, job or Ma Zhengshun care professionals everywhere to seek for his wife. When her daughter out of slack work, spare some time to go home when busy.
Ma Guofu 23 years old, unable to walk properly, and little time reading from the sister to school carrying books for three years. Each school, Ma Guofu will be a joke, reading for three years, he decided not to go to school. Now he's less than a meter tall, was S-shaped legs, hands and bent due to repeated fractures.
Ma Guofu recalled, he was 8 years old to 12 years old often fracture after the age of 12 will fracture a year, and now a little better. Because the money treatment, family members can only use herbs to help him dress, a long time, fracture deformities of the legs also changed. At home, he can only help the family to do some relatively simple farm work, heavy work ENTITLED TO BE dry. This year,
designer handbags, Ma Guofu to find relatives by 1000 dollars, buy 100 ducks to raise, can not long before all the ducks infected with plague died. After Ma Guofu and Trustee bought 40 ducks, hoping to be able to earn a living by selling duck eggs, can be nearly half of the duck is dead, and now only 20 more than just a.
day, Ma Guofu are feeding the birds themselves. He squatted on the ground before the chopped vegetables and carefully mix with flour and bran, add water, stir well, put the duck on the duck side food stand, and then with both hands effortlessly climb the shelves in the duck, duck foot stand to live under a Only iron, forced to climb, and then put a handful of duck food evenly on the four trough, finished back down again. Watering the ducks, he push lightly with a bamboo pole to sink out, fill water, and put back.
now, Ma Guofu ducks have been raised for four months. Although the mobility, but he hopes to do some things within its power to improve the look at home life.
built a new house, other people at home are penniless. Five horses are right and the youngest is living in Ma Zhengfu left three fourth of the old house, two people sharing a living room, a living room on each side, are two people's bedroom.
into the right horse is the bedroom, separated by a cupboard, a bed on each side, this is the place where he and his daughter shelter.
the right horse is 45, has been twisted legs, leg thinner than the arm. Fracture of his right leg because of too many times, and now have access not on the bone, just gently over the pages, you can flip over the entire foot. Right leg still pain, but little effort is made not.
the right horse for many years was unable to stand, walk, when only fours crawling, hand grind a thick layer of calluses. Speaking from small to have suffered more than forty years now, he said: In order to fetch water, horse is the right to lie on the well, with both hands to pull up the bucket full of water, reuse plastic bucket teeth on the handle, crawling the water into the kitchen. His four front teeth fell off so early.
horse is right has a daughter, Ma Chunyan. Unfortunately, she also suffered from brittle bone disease, often fall to 6 years of age, fracture several times because of surgery on the left thigh, leaving a depth of approximately 1 cm scar over 10 cm long, and now can only use a cane walk. Ma is the right of all their hopes pinned on her daughter's body. For the daughter to see a doctor, he had borrowed ten thousand dollars of external debt, since there are unable to pay 4,000 yuan loan sharks. Last year, the horse can not stand is the right of the wife, divorced him, leaving him and his daughter had each other.
2007, the horse is the right to live in the village were found to help people stripping leather, one morning, the time spent stripping the skin of a cow, earn 20 dollars. The living can not be fixed income, it was a slaughter of cattle have work to do, usually only staying in the home. A little home field, and his wife divorced, the family no one can plant can only rent out two or three hundred dollars a year in exchange for rent. Local government 50 yuan monthly subsistence allowances,
tory burch bags, father and daughter add up to a total of 100, usually by spending this money on, in addition to buy rice and salt, horses are not the right to buy other things, the clothes he was wearing, are his wife left.
10 月 25 evening, the horse is going to do the right dinner. His family's kitchen stove is less than half a meter high, usually cooking, Ma was sitting right next to stove. Only a small kitchen to Zhe Ergen, plus a white lotus has been done. over the rafters, and even cited a match light went out. He had climbed out of the kitchen, looking for a straw fire.
Childhood is the mother to send her to school, primary school in the village, but also convenient; and junior high school in the town, the mother away from the vicinity of the school rented a house, sooner or later transfer her to school.
mothers and fathers after divorce, Ma Chunyan school would like to become a bubble. Last year, was read the first two days of the Ma Chunyan drop out. This made her very sad - for school, her cost far more than their peers.
Ma Chunyan Although we can not walk properly, but doing well, when it comes to primary school exam, the school first. Prize money awarded to her school, but she can not go to school to pick up, the teacher sent home the prize. Junior high, though the first floor classroom, physics and chemistry courses may need to go to school building to go on the third or fourth floor, climb on crutches Ma Chunyan, no one to help, she has a lot of class not only can a person self-study in the classroom. Because of mobility, even the toilet is also very difficult, Ma Chunyan not only endured thirst to drink water, so when her mother from school, then go to the bathroom.
After dropping out of school at home, Ma Chunyan school did not give up the idea of self-study at home every morning to see the book one morning, afternoon, when it a rest. This year's junior high school graduation exam, the school teacher informed her, in order to take the exam, she found his own cousin back into the classroom, is hoping to get a junior high school diploma.
said.
doctor: OI can not be cured
patient care activities only
youngest Ma Zhengfu, although the family has his wife and daughter, daughter fortunately not suffering from brittle bone disease However, the conditions at home was not much better. Because they can not normally walk, Ma Zhengfu can only stay at home sweep the floor, with the rice cooker to cook, and then leaning on the wall of the courtyard, go to the family raised cattle feed the grass. Rest of the time he could only idle. Upstairs bedroom floor collapsed, and he also unable to repair. Month, he received 50 of guaranteeing payment.
where this disease come from? Ma Zhengshun recalls: people have OI. fractures often when a small, family and difficult, treatment is not timely, only to find a simple village people use herbal wrap, the problem was more serious. bit brittle bone disease - the death of the eldest sister's daughter Mali Fen, granddaughter Ma Ping. Yesterday morning, fifty-ninth in Kaiyuan City People's Liberation Army hospital, the reporter found the Mali Fen Ma Ping and her daughter.
Mali Fen said her legs are bent at birth and can not walk properly. Chuk Yuen town after she married, gave birth to a daughter, Ping Ma, but Ma Ping also inherited a brittle bone disease, fractures of both legs often.
10 17, Ma Ping, accidentally fell down while playing, resulting in disruption of left femur fracture, to the hospital for 10 days already spent over 10,000 yuan. Fracture of her left leg before off, left untreated, is now deformed. Ma Ping is very thin, as long as others look at her injured legs, she was crying with fear.
Mali Fen said, her daughter when the small station unstable fractures of the last three years has been 7 times, before casually bandage fracture, the surgery was to borrow money to the hospital. Family life is also very tight. Fortunately, however, Ma Ping, the more successful the treatment, fracture once, not treated in time, resulting in leg deformities. The more successful the surgery after the fracture, fracture will no longer be the case if the left leg would not have any effect.
Yuda Fu said, the mother of Mali Fen from the horse's legs Ping situation, she is suffering from osteogenesis imperfecta, also known as brittle bone disease. people, the cornea will take a little blue, nails also particularly rough. Patients in ordinary life to avoid a fall, if fall after the fracture, the need for timely treatment to the hospital,
miu miu handbags, not treated easily lead to bone deformities, affecting the future life.
banana family lived in the village of Ma, journalists around them that, in addition to family members suffering from brittle bone disease horse, the other villagers do not have the disease.
horse family life in trouble because of illness, the village neighbors who work in the fields home, it is convenient to the horse family, always with some vegetables in the past. Travel time, many people looked down, was struck by the family for this, uttered a heavy sigh.
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